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I wrote this about my personal journey with my Special Needs Child. If anyone can gain support it will have been worthwhile:
A baby born such an excitement,
A special gift, something heaven scent
The joy is palpable in the air
Everyone participates in the simcha with happiness and fanfare
The family so loving and doting
On such a high, literally floating
Bonding with the new addition
Thanking the one above for this miracle creation
Time passes by
Here and there escapes a sigh
The milestones are not being met
What is going on they whisper and fret
With mounting frustration they silently vent
Running around to yet another specialist they went
What is with our child they cry in dismay?
As they turn to hashem heartbroken they pray
Please help us this hardship to endure
Our ache is so painful, it’s literally sore
Their tears are spent
As they moan and lament
The tantrums are tearing us apart
Ripping us to shreds and wounding our heart
Objects get thrown across the room
As our child struggles, rages and continues to fume
The family is at a loss
Why is our child so angry and cross?
Then they get the diagnosis so hard to face
AUTISM-a new journey they need to embrace
The guilt and shame
The sadness and constant self blame
“If only” became the mantra the new song
I would’ve done this or that went the chant all day long
It really is so painful to be thrust
Into a sad reality where “the perfect family myth” gets bust
A new world they enter
“The Special Needs” child at it’s center
Trying to obtain the best care
By asking and searching to be the most self aware
Trying to block out the pain
To be strong and not to complain
But we are humans, we are meant to Feel
To be genuine and to be real
To express our emotions as they come and go
Not to shut it out or to hinder its flow
And that is the ultimate lesson to be learnt
To give and to take, to avoid getting burnt
To shoulder the burden with others out there
who really want to help and care
And to thank Hashem for granting us such a gem
A flower so beautiful, A stunning BLOSSOM
This is very inspiring, Banana! It shows your incredible strength you possess! Life isn’t easy at all. But it can be less painful or easier when try as much as possible to embrace our personal challenges. Thank you so much for sharing!!
Thank you so much for sharing this avocado! It’s truly beautiful and inspiring how you encapsulated this journey with minimal words while provoking maximum thought and feeling.
Thank you for sharing this beautiful poem- an inspiration for every parent.
May Hashem bentch you and all of us with the abilities to see the gift in every child.
